What are the results from that
very successful campaign to cure ALS last summer? You know the bucket challenge
where it seems that just about everyone was willing to dump a bucket of ice
over their head. Sure millions of dollars were raised but where did it go?
People are still dying from the still incurable disease. The Federal Drug
Administration is slop in approving the few new available drugs to treat the
suffering patients. Congress is too busy doing nothing to help out here. Where
is the public outrage with their empty bucket’s’ now?
ALS is a fatal neurological
disease that seems to attack people who
are athletes and in perfect health. Lou Gehrig, the famous baseball player was the first to
give the problem a real spotlight in 1939. Then the disease was ignored for 75
years. Maybe the bucket challenge gave people more spotlight than the disease
but it also raised hundreds of millions of dollars this time in the process. The
disease attacks very normal people in a very subtle way. It starts in the hands where you begin to notice
that simple things are hard to do like picking small things up or holding on to
things. Paralysis shows it’s ugly face. The disease moves quickly to destroy your body
and it is still difficult to find any kind of treatment.
It is more like just getting a
caregiver to assist with the bathroom, cutting food, feeding yourself, walking
and even talking. Before you know it all your muscles and systems shut down
until you don’t even have the energy to breath. No one wants to loose your independence
while your thinking process is still quite normal. No one wants to be trapped
in their own failing body. No matter how horrible this is people do think there
can be a cure someday. ALS researchers are fighting the clock trying to find an
effective treatment. There is the ALS Therapy Development Institute in
Cambridge, Massachusetts is a place that solely focuses on this disease.
The disease is unrelenting muscle
loss from all over your body. Your brain stops telling your muscles to
function. There is NO EFFECTIVE TREATMENT TOWARDS A CURE TODAY. THIS HIGHLY
SPECIALIZED PLACE RECEIVED ONLY 4 OUT OF THE $220 MILLION DOLLARS RAISED FROM
THE BUCKET CHALLENGE.
Where did the money go?
The place immediately spent their
meager 4 million into developing their most promising drugs. A lot of their
drug research is put into slowing the disease so patients can at least have a
longer more rewarding life. They tested more than 300 various drugs. Those that
are ready for clinical trials are being halted by the slowness of the FDA to
approve the process. Patients are lined up willing to try anything to be the
human research mice just to try something since there is still nothing out
there treating the disease. Many suffering from ALS are going abroad to seek
treatment from other countries.
WHERE IS THE $ 216 MILLION
DOLLARS?
What is the harm in releasing a drug that
sufferers are willing to take a chance with? NP001, Neuraltus Pharmaceuticals,
Inc. is a promising drug that is not allowed to sell it’s product in America to
help Americans. They need money to continue their research and in America they
are not allowed to charge for unapproved drugs.
WHERE IS THE $216 MILLION
DOLLARS?
If this company had some of that
money, they could be giving out the drug for free!!!
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